Sunday, December 16, 2018

Just a mommy talking about her baby. Not.

If you were not in the audience at the most recent Malki Foundation Rainbow of Music concert in Ra'anana last month, chances are you won't know about the lady who honored us with a short speech (6 minutes) right after the intermission.

Details are not so important. Facts are not so important. What's important is that this lady is a mother who, as happens so often, found herself in a desperately difficult situation that involved her family and her youngest child - a baby whose birth was far more dramatic than parents ever wish for.

Unedited, this is what the lady said to us at the concert.

We have already shared this with some of our friends. If you watch it through to the end, you might feel like doing the same.

Friday, November 30, 2018

Sorry we missed you (or glad you were there) at our great Ra'anana musical evening

We had a terrific Rainbow of Music concert in Ra'anana last week. An almost-full house enjoyed some rousing, upbeat music along with some moving (and brief) speeches. If you were there, you will have gotten a link to a four minute video sampler of the night's delights already. And if you didn't, here it is:

Some background about the performers and personalities who adorned the stage:
  • Shlomo Gronichpianist, arranger, composer, is one of the most prolific and diverse musicians active in Israel during the past four decades. Having composed nearly a thousand original pieces – pop songs, compositions for orchestra and choruses, soundtracks for film, theater, dance and television programs - his opus gives expression to his extraordinarily broad experience and talents.
  • His Excellency Mr Chris Cannan has been serving as Australia's ambassador to Israel since June 2017. A senior career officer in Australia's Department of Foreign Affairs and Trade (DFAT), he has held top-level positions in a variety of postings and portfolios including overseeing Australia's aid investments in health, education, climate change the UN 2030 Agenda for Sustainable Development. He was previously DFAT's Chief of Protocol, head of the Staffing Branch and of the Environment Branch and worked on a string of bilateral issues including South-East Asia and Europe, international security and arms control and public affairs. Mr Cannan did not sing but his eloquent speech to the audience was received with great warmth.
  • Colin Schachat has established himself internationally both as renowned baritone and cantor. He performs a wide range of popular repertoire including Broadway, Yiddish, Opera, Hassidic, Israeli, Italian and Spanish songs. He is frequently heard performing in concerts with some of the world's leading orchestras, choirs and singers . His unique rich baritone voice combined with rare artistic versatility has allowed him to build up an international career beyond Israel which has been his home since 1991.
  • Avremi Roth transitions easily between chazanut (the art of the prayer leader in Jewish liturgical tradition) and popular hassidic songs. At High Holydays time, he is the prayer leader in the Ramat Shalom community in Mexico City. Throughout the year, he performs his music in concerts in Israel (including earlier appearances in our Rainbow of Music events) and internationally.
The backbone of last week's concert, as of every previous Rainbow of Music event to benefit the Malki Foundation (this was the eleventh such event since the series got underway in 2012), was the Ramatayim Men's Choir under the leadership of the inimitable Richard Shavei-Tzion. As the distinguished and talented men of Ramatayim get younger and ever more harmonious, their concerts - and their fabulous efforts on behalf of the Malki Foundation's work - get increasingly unforgattable. And enjoyable.

If you weren't there, you might want to make a note of the next Rainbow of Music concert in Jerusalem about five months from now. 

Thursday, October 18, 2018

Campaigning in Manchester: Please share the video

We are pleased to unveil our newest Malki Foundation video. This one was made especially for a fundraising campaign getting underway now by the students of the King David High School in Manchester, UK.

The video, produced for us by Momento Media, was enthusiastically received by the students, and we are so grateful for their support! 

Thank you especially to the young star of this production, Eliav Markowitz, who graciously volunteered his time and acting abilities in order to add to the success of this fine effort. 

The video is online here. Please watch and share it far and wide.

Tuesday, October 16, 2018

Thank you!

Our sincere appreciation to the Paul and May Arieli Foundation which has recently provided support to the Malki Foundation by way of a generous grant to fund children's paramedical therapies in Israel.

We thank the trustees for partnering with the Malki Foundation to help children with disabilities reach their fullest potential and to have a better life.

Thank you!

Monday, October 15, 2018

A child is now walking

Some great news!

Chaim's mother has just called to tell us that he is now walking with a walker! 

Chaim has been with the Malki Foundation for 4 years [background] and has progressed so much.

When we wrote about him earlier, he had suffered epileptic attacks that made him unable to move on his own. 

His mother, E, has done everything in her power to get Chaim the therapy he needs. And with incredible results. 

This past June, we visited him at his home and he was moving around, laughing and playing with his therapist on a floor mat. And now, a few months later, he is walking. 

This is the power of dedication - from his family, his therapist and the Malki Foundation. We all believe in Chaim. And he has shown us how far that belief can go.

Sunday, October 14, 2018

Go, Rob, go!

Rob Taub
Support Malki Foundation UK's Rob Taub as he runs in the Royal Parks Half Marathon on October 14, 2018 by clicking on this link.

The 13.1 kilometer route takes in some of the British capital's world-famous landmarks on closed roads and four of London's eight Royal Parks: Hyde Park, The Green Park, St James's Park and Kensington Gardens.

All proceeds from Rob's run will go to help fund therapies for children with disabilities in Israel via our acclaimed Zlata Hersch Memorial Therapists on Wheels Program, which has been operating successfully and efficiently since 2011.

He's been training like crazy so we're sure he'll do great!

If you live in London, please be sure to go and cheer him on!

Thanks, Rob, for your commitment to the Malki Foundation and to children with disabilities in Israel!

UPDATE 2:30 pm Jerusalem time, October 14, 2018: Well done, Rob! Finished the course in a little over two hours. Next year!

And sincere appreciation to Yael Bloom who also ran the race for Malki Foundation UK and David Berkley who was obliged to withdraw on the morning.

Job very well done, friends.

Thursday, September 6, 2018

The story behind this year's New Year cards

If you receive regular mailings from the Malki Foundation, then you very likely have already seen the specially-designed Rosh Hashana cards that we produced for this year's New Year season. They're strikingly different from any previous year's and we're very  proud of them.

There are four designs, each card bearing one of those designs (all of them are here). Four cards, one of each design, were enclosed gratis with the annual report we sent out to our supporters in the past week. (We're of course selling them for anyone who wants to send them to their friends.)

There's quite a story that goes with the cards. It involves the Avni family – Gali and Keren and their two beautiful children Omri and Michal. For our purposes, their story begins three years ago when Michal was born. 

Gali and Keren realized there were problems with Michal’s development from about when she was two months old. Consulting doctor after doctor, they were given results and assessments that simply lacked clear answers. The uncertainty and fear - a phenomenon most new parents know - kept growing.

The young parents stayed hopeful. They felt the clarity they sought would emerge through genome sequencing - an expensive but illuminating process. And indeed those genetic results did throw some light on the mystery of their younger child. 

According to the diagnosis, Michal has an extremely rare genetic disease known until recently only by a cryptic string of letters and numbers representing a specific gene mutation: PPP2R5D. In the past year, that condition received its own name: Jordan’s Syndrome

There's very little that medical science actually knows about the condition. So to help their daughter, Keren and Gali set off on a worldwide search for information. They also sought out other families grappling with the same mutation in a child of their own. The social media helped - they found a support group for parents coping with the same very rare mutation and together with the other families they encountered this way, they are learning and researching.

They know they have a long road ahead - but Gali and Keren remain optimistic: “The potential is hidden in everything,” Keren told us. “It just needs to be seen.” 

The Malki Foundation has the privilege to facilitate essential paramedical therapies to Michal via our Therapies at Home Program. In Michal's case, this means Occupational Therapy, Horse-riding Therapy, Speech Therapy and Hydrotherapy. 

Now to the part about the cards. 

The original art-work for the Rosh Hashana cards (one of the four designs is at the top of this post) was done by little Michal herself. Her father Gali, a graphic designer by profession, then took Michal's creative drafts and, using them as his base, turned them into the sophisticated works of art you can see in our cards collection. The blend of father and daughter inputs is striking and, we think, very successful.

Here's the important message for the New Year that we think we relay via these designs. Michal, as of today, has 114 friends she doesn’t know who also receive therapies through the Malki Foundation. Your partnership with us makes this possible.

These therapies - always therapies that were declined by the families' health insurer (in Israel: Kupat Holim, of which there are four) - are tremendously important as well as greatly appreciated by us and of course by the children themselves. And as we keep saying. it's a privilege for us to be able to support parents who battle against adversity to do everything they can for a loved child with extreme special needs.

As we tell you in previous years, we could not possibly achieve all that we do without the support of our donors. We feel very blessed to have them as a Malki Foundation supporter and we can’t thank you enough!

On behalf of all of us at the Malki Foundation, we wish you and yours a very happy new year full of peace, prosperity, and growth.